Warning: Declaration of StatigramWidget::widget($args) should be compatible with WP_Widget::widget($args, $instance) in /var/www/app/wp-content/plugins/instagram-image-gallery/plugin.php on line 0
Racing for Amelia

Racing for Amelia

 

Good afternoon! I hope you’re having a great weekend. Did you get a chance to find a Bird Mart near you? Ha! By the way, Andrew asked me last night if I named that post “For the Birds”. Dang it. That would’ve been SO much better. I really should start running my posts by him before publishing.

This morning started out with a Lazy Mama Mocha Spinach Smoothie (made in my Vita who just had to sneak into the picture).

IMG_6162 

Then the boys and I were off for a long training run for our race we have coming up IN 4 WEEKS! Ahhh!!!! The boys did pretty well. Me, well, I may have said a few not so appropriate words in my head up a couple of the hills. I did find that taking pictures was a good excuse to make some pit stops though. (This was all one BIG hill around mile 5- definitely NOT my favorite part of our route.)

003006

I also realized while I was running that I need to get my butt in gear to help raise money for our dear friends’ daughter. The boys and I are running our next half marathon for her. As tough as these darn hills may be, they are NOTHING compared to what this family has gone through. We’re hoping we can make a difference and help our friend Amelia get one step closer to getting the gift of hearing.

Here is the reason we’re running our next race.

(I added a Running for Amelia page last week, but felt I needed to republish this.)

Amelia’s Hope for Hearing

Amelia is one amazing little girl.

IMG_5530_thumb1_thumb

With an amazing, loving and humble family who are dear friends.

IMG_5543_thumb1_thumb

Here is their story.

Our daughter Amelia was born on June 26, 2009 in Encinitas, CA. After and uncomplicated pregnancy with no problems suspected, we were shocked when Amelia was born deaf and with multiple craniofacial abnormalities.


Her doctors diagnosed her with facio-aricula vertebral malformation spectrum. Her symptoms included cleft lip/palate, eyelid colobomas (missing part of her right eyelid and most of her left eyelid), and a small VSD (hole in her heart). She is also missing her auditory and balance nerve in both ears.

She spent 3 weeks in the NICU at Rady’s Children’s Hospital in San Diego before she could come home. It was an incredibly difficult time for us, but thankfully we are so blessed to have a strong and loving support system with our family and friends.

Amelia has been through 8 surgeries already which include her initial cleft lip/palate repair and eyelid reconstructions. She is doing amazingly well and we could not be more pleased with her progress.

Because of the nature of her hearing loss, she is not a candidate for cochlear implants. She is however, a perfect candidate for an auditory brainstem implant (ABI). The ABI is the only device clinically proven to restore partial hearing ability to people without auditory nerves. Unfortunately, these implants are not approved by the FDA for children under 12 years old in this country. We have been in contact with a doctor in Italy, Dr. Colletti, who has been effectively implanting children with ABIs and has achieved great success.

This is a very expensive procedure and is not covered by our insurance. The procedure itself costs $90,000 which includes testing, surgery, and the implant device but does not include airfare and accommodations. Dr. Colletti has informed us that we will need to stay in Verona for 4-6 weeks because the ABI cannot be activated right away and Amelia will need to be monitored closely.


Anyone who knows our family well knows we have a hard time asking for help. However, we want to do what is best for Amelia. We are humbly asking for donations for this once in a lifetime opportunity to give Amelia a chance to hear. The younger she is when she receives the implant, the greater her chance of success. We are hoping to schedule the procedure within the next six months.

Here’s what the STUFT family is doing to help.

The boys and I are going to run the Silver Strand Half Marathon coming up on November 13th. I know I’ve said before that I feel like the ability to run is truly a gift, so this time we’re using our “gift” to help out an amazing young girl.

IMG_2184_thumb1_thumb

We are racing in hope that we can in some way help give the gift of hearing to Amelia. (Hopefully the boys won’t have to sport their pajamas this time.)

We are asking for sponsors and/or donations for our race. Even if it’s only a small amount, anything will help. All donations will go directly to a special benefit fund for Amelia.

Check donations can be made out to:

Amelia Heston Benefit Account

And sent to:

STUFT Mama

1835A S. Centre City Pkwy. #198

Escondido, CA 92025

You may also donate directly through PayPal through a link on her blog, but the family is charged a small processing fee. If you do donate through PayPal please email me at stuftmama@stuftfitness.com so I can add your donation to our list.

We will make sure to send a special “thank you” to everyone who donates. I will also randomly select 3 people (US residents only) who donate to receive a package of homemade Peanut Butter Doughtzel Balls.

Please help give the gift of hearing to Amelia!

Smile

Feel free to share, email or pass this post along. Any help is truly appreciated!

Thank you!

See you later tonight with some weekend kitchen messes experiments. he he!

Related Posts Plugin for WordPress, Blogger...

Comments

  1. 1

    Awesome!! Look for something this week!

  2. 2

    What a wonderful thing you’re doing running a half for Amelia. 🙂 And what a rockstar you are for running it with TWO kids!

  3. 3

    Your amazing Kristin!! Your doing great things for Amelia! Keep me posted with anything I can do! 🙂
    And loving your vitamix!! 🙂

  4. 4

    Wow, that’s quite a story. It’s so hard to hear how much this costs the family. I plan to donate…thanks for sharing! (got this link from the Fitfluential page, btw!)

  5. 5

    What a great reason to run. Good luck with all your training. I ran forever with a baby jogger and it is one tough workout.

    • 5.1
      STUFT Mama says:

      Marie- oh man, yes, running with a baby jogger is NO joke. It gets worse every time. Now that they’re 60 pounds together plus the stroller it’s really not fun. ha!

  6. 6
    lindsay says:

    Now this is what racing is about! Supporting others, taking care of health, and so much more!

    • 6.1
      STUFT Mama says:

      Lindsay- thanks. I know, I feel selfish a lot about my running and races, so I figured out I needed to do what I could to help someone else. Thanks for stopping by and for leaving a comment! I’m off to Cotter Crunch now! 🙂

Speak Your Mind

*

© 2011-2020 STUFT Mama All Rights Reserved